This isn’t a St. JUDE Commercial!

When you hear people tell a story and they say, “I never thought it would/could happen to me” you understand what they mean, but you don’t realize the depths of those words until you are walking a journey in a life you don’t recognize. You think your schedule is important and that you have appointments

Day 24 of Consolidation

Oh what a day…… If I was not living through this journey myself I would not believe the situations that occur. When I tell you my son just can’t catch a break I really am not exaggerating.  Before I start this let me say we were originally not scheduled until Wednesday for labs and Thursday

Quick update Day 17 Consolidation

Sorry I haven’t updated sooner. In case you aren’t aware we are home from the hospital. That’s been a blessing and a relief. Although we have been home since last week our days have been filled with appointments, procedures  and treatment and even at home he has had to do IV antibiotics 3 times a

The Lonely Side

Day 9 of Consolidation, day 49 of this journey is when it happened, I hit a wall. A breaking point if you will. Exhausted beyond explanation, physically, mentally, and emotionally, but so is my family. It was in this place that the true weight and realization of all my past decisions, behaviors, actions, and reactions

Day 5……

Just wanted to hop on and give a quick update. We are still in the hospital. It is day 5 of Consolidation and day 45 of our journey. The Dr’s. tried to change the antibiotics to one he could go home on orally and his leg started to get bad again quickly so they put

CONSOLIDATION DAY 2 OF…..

Just a quick note to update all of you. Yesterday we came back to the clinic to have a PICC line placed since Bjs port is no longer usable. We needed to officially get started with consolidation treatment, so what should have been day 2 ended up being day 1 . He did eventually get

Just a complete nightmare!

Today was supposed to start the 9-12 month Consolidation/Intensification Phase of Bjs therapy but that did not happen.  The incision site from where his port was placed still has not healed and he has had to have it  packed and cleaned several times.. There was a problem after the last time he saw wound care

Day 36 of….Start all over!

Today was a long busy day. We went to receive the results of Bj’s bone marrow biopsy and last Lumbar Puncture. We are thankful for Bjs medical team and everyone that has been apart of his care up to this point. The results were good results and we have crossed the first hurdle. Bj is

Day 28!!!!!!

Tomorrow is day 28!!!! Why is that such a big day you ask? Well I will tell you, it is the last day of induction therapy, YAY!!! It is the day we get the bone marrow biopsy and Lumbar Puncture to see if there is any more blast cells (Leukemia) in Bjs body! Today is

Day 23…

I know so many of you are and have been praying for Bj and so I’m trying to keep you all updated as best as I can. This morning Bj had a cat scan done to check his lungs and upper airway for any bloodclots that would cause further concern. The cat scan did indeed