Quick update Day 17 Consolidation

Sorry I haven’t updated sooner. In case you aren’t aware we are home from the hospital. That’s been a blessing and a relief. Although we have been home since last week our days have been filled with appointments, procedures  and treatment and even at home he has had to do IV antibiotics 3 times a

Just a complete nightmare!

Today was supposed to start the 9-12 month Consolidation/Intensification Phase of Bjs therapy but that did not happen.  The incision site from where his port was placed still has not healed and he has had to have it  packed and cleaned several times.. There was a problem after the last time he saw wound care

Day 11 of….

Well the day started with me over sleeping. It was a long night without much sleep. Last night was our 3rd night home and it was the first night by myself. Bri has officially gone back to school, Brian back to work, thankfully he gets to work from home, and as everyone else goes back

The Road is bumpy, Real bumpy!!

Whew!!! Its been awhile I know. So much has been happening in my little world and although writing is such a great outlet for me sometimes life is so overwhelming that writing is the last thing that I can do. Sometimes you have to just retreat into your safe place and regroup, that is where

The Skin We’re In

My husband, My Children,  My Brothers in law, My sisters in law, my nephews, my nieces, aunts, uncles, countless cousins, and many friends. AT ANYTIME ANY ONE OF THOSE PEOPLE LAYING DEAD IN THE STREET COULD BE SOMEONE I LOVE DEARLY AND DEEPLY AND FOR WHAT?? ALL FOR THE SKIN THEY’RE IN We all wear this skin differently

Phantom: Yet Real As Ever

Invisibility isn’t a real super power, right? Well guess what I have it. I have an invisible limb and I still feel everything about it. The only difference with it is that I can’t use it. Most day I feel like I am going out of my mind because I feel things with my left foot